Haemodialysis Electronic Patient Portal: A Design Requirements Analysis and Feasibility Study with Domain Experts

Citation

(2019) Haemodialysis Electronic Patient Portal: A Design Requirements Analysis and Feasibility Study with Domain Experts. 2019 IEEE 32nd International Symposium on Computer-Based Medical Systems (CBMS), Cordoba, Spain, 05.06.2019-07.06.2019. IEEE. https://doi.org/10.1109/cbms.2019.00051

Abstract
In 2013, the UK national renal registry established 57,000 adults in the UK were treated for advanced kidney failure, 23,683 (42%) receiving haemodialysis. Haemodialysis patients face some of the highest treatment burden in the National Health Service (NHS) and are among the most 'expensive' to treat. In addition, patients endure complex treatment trajectories. In this study, we have sought to gather and synthesise the opinion of clinical and Human Computer Interaction (HCI) domain experts (n=9) to establish a set of initial design requirements in order to test the feasibility of developing a digital aid (i.e. electronic haemodialysis patient portal) to support patients in the course of their treatment. Expert feedback was gathered by means of interviews and focus groups in order to instruct design requirements for a haemodialysis patient portal.

Keywords
Portals; Prototypes; Interviews; Hospitals; Kidney; Human computer interaction; advanced chronic kidney disease; patient portal; design requirements; expert study