Project

A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services and treatments

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Funded by National Institute for Health Research.

Collaboration with Bangor University, Cardiff University and University of Bath.

Chronic pain (CP) in childhood is widespread affecting at least an estimated 4% to 14% of children and adolescents and has considerable negative impacts on children’s social and family relationships, school attendance, social and sports activities and increased use of healthcare services and medication. In the UK services for children rely largely on primary care services with limited provision of and access to specialist chronic pain services and multidisciplinary pain management. To successfully develop, design and deliver appropriate services and interventions which meet the needs of patients and their families, it is vital that we understand how children with CP and their families experience chronic pain and health and social care services. Our aim is to synthesise published qualitative studies on the experiences of children with chronic pain and their families in order to increase our current understanding of paediatric pain to inform the health and social care services’ response to and management of paediatric chronic pain. The review questions are: how do children with CP conceptualise CP. How do they live with CP? What do children and parents conceptualise as ‘good’ pain management and what do they want to achieve from pain management interventions? From the perspective of children and their parents, how do health and social care services respond to and manage children’s CP? Design: we will conduct a qualitative evidence synthesis of the experience of children and young people up to age 18 with chronic pain and their families using the systematic, interpretive methodology of meta-ethnography. Meta-ethnography is ideally suited to illuminating complex healthcare issues by developing theory about how a health and social care service, intervention, policy, or strategy works and how patients experience it. The findings will contribute to clinical guidelines on CP in children; contribute to training of health and social care professionals regarding paediatric chronic pain management; and inform service, treatment and intervention design and delivery. This could improve the quality of life of children with CP and their families and ultimately, could reduce burden on NHS.

Total award value £341,019.43

People (4)

Professor Emma France

Professor Emma France

Professor, Health Sciences

Dr Isabelle Uny

Dr Isabelle Uny

Senior Research Fellow, Institute for Social Marketing

Professor Liz Forbat

Professor Liz Forbat

Professor, Faculty of Social Sciences

Dr Line Caes

Dr Line Caes

Associate Professor, Psychology

Outputs (11)

Book Chapter

Using visual methods to support synthesis

Silveira Bianchim M, France E & Noyes j (2023) Using visual methods to support synthesis. In: Noyes J & Harden A (eds.) Cochrane-Campbell Handbook for Qualitative Evidence Synthesis, Version 1. 0.. London: Cochrane. https://training.cochrane.org/cochrane-campbell-handbook-qualitative-evidence-synthesis

Presentation / Talk

How children and young people with chronic pain and their families experience and perceive pain services and treatments and living with pain: a meta-ethnography

France E, Caes L, Uny I, Forbat L, Silveira Bianchim M, Noyes J, Jordan A, Turley R & Thomson K (2023) How children and young people with chronic pain and their families experience and perceive pain services and treatments and living with pain: a meta-ethnography. Lothian Health and Care Professions Research Conference 2023, Edinburgh, Scotland, 07.11.2023.

Review

A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments

France E, Uny I, Turley R, Thomson K, Noyes J, Jordan A, Forbat L, Caes L & Silveira Bianchim M (2023) A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments. Cochrane Pain, Palliative and Supportive Care Group (Editor) Cochrane Database of Systematic Reviews, 2023 (10), Art. No.: CD014873. https://doi.org/10.1002/14651858.cd014873.pub2

Conference Paper (unpublished)

Co-producing with children and young people for a meta-ethnography on experiences of chronic pain, treatments and services.

Silveira Bianchim M, Jordan A, Uny I, Noyes J, Forbat L, Line C, Ruth T & France E (2023) Co-producing with children and young people for a meta-ethnography on experiences of chronic pain, treatments and services.. Abstracts of the 27th Cochrane Colloquium. Cochrane Colloquium, London, UK, 04.09.2023-06.09.2023. https://doi.org/10.1002/14651858.cd202301

Article

A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments

France E, Noyes J, Forbat L, Uny DI, Jordan A, Caes L & Turley R (2022) A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments. Cochrane Database of Systematic Reviews, 2022 (7), Art. No.: CD014873. https://doi.org/10.1002/14651858.cd014873

Conference Abstract

522 A meta-ethnography of how children and young people with chronic pain and their families experience and perceive pain services and treatments and living with pain

France E, Turley R, Uny I, Forbat L, Caes L, Jordan A, Noyes J & Bianchim MS (2022) 522 A meta-ethnography of how children and young people with chronic pain and their families experience and perceive pain services and treatments and living with pain. Royal College of Paediatrics and Child Health, Liverpool. Archives of Disease in Childhood, 107 (Supplement 2), pp. A514-A515. https://doi.org/10.1136/archdischild-2022-rcpch.828

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Research centres/groups